Next week shall be making my own way in here and will have a yellow ticket for blood tests.
Well creatinine has bounced up again 20 places to 178. Not ideal and worries me. Tacro levels are fine so on changes needed on that front. Blood pressure is high and now going to add another pill to my collection. Protein levels creeping up. I pray to god this doesnt mean that the FSGS is back and she did ponder over this. I am more than a little panicky right now as you can imagine. Lets also see what blood tests are like today! When will this end? Does it end? Have I become a slave to medical science?
I have been staying with my parents for the past 3 and a bit days at their Dorset home. I have had a very nice time indeed. Just taking it easy really but we have been out on a couple of decent walks to stretch the legs and warm up the muscles. You may have noticed that I have started to do some photography again albeit with just a couple of lenses and no tripods or other frills. This is simply because I am being very careful with what I carry, so keeping weight to a minimum.
Quick post: Now 6 weeks since the transplant operation and this also means:
- Allowed to drive without limitations
- Can start to do a little more physical activity and lifting things!
- I think I can now take a bath!! That will get rid of that smell…….
I thought I should share this with you. Christina Ho my most excellent and revered Transplant Nurse from St Helier Hospital who has done the most amazing job. We are eternally grateful to you Christina! Where was I? Lost track there….. Anyway she has asked me to write a summary about my feelings during pre-op, post-op and about the donation process. So this is my reply to her email, I think it reads pretty well…..
I have just been reading in the paper about a brave young man of 15 years who has this year received his second transplant. Even more incredible is the fact that both transplants were donated by both of his parents, his first at around 7 years of age from his Mum and recently his Dad.
You can read more about his story at - http://qblue55.blogspot.com/
Its great to see Autumnwatch on again and delighted that this year its been based around Brownsea, a place that my Wife and I have visited fairly recently and loved a great deal. It’s also fantastic that Simon King is down at Petworth - another favourite place of ours! So we shall be following this series very closely indeed.
Welcome back to the diary. Its been a lovely weekend. Great night out on Saturday with the fireworks and a good group of friends. Done something silly to my right leg. Damn. Then I left my phone behind at Frensham garden centre where we had some lunch and I didn’t realise until we got home. Bugger.
